Projects

Are You Well
An art-in-hospitals initiative of the UCLA Art and Global Health Center

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In 2004, a health communication organization called Nalamdana—meaning “Are you well?” in Tamil—began collaborating with the Government Hospital of Thoracic Medicine in Tambaram, India, just outside Chennai. Are You Well has today evolved into a leader in its field, using theater, music, and radio as tools for HIV education, stigma reduction, and to promote an atmosphere of healing. The key to success has been a close working relationship between medical staff and artists. In conversation with the hospital’s director, doctors, nurses, and counselors, Are You Well devises brief interactive role-plays and longer evening plays on issues relevant to people living with HIV and AIDS. The plays entertain and generate goodwill among a particularly appreciative and eager audience of hospital patients, and the project fills a communication vacuum for up to 1,000 new patients who arrive at the hospital each day.
After witnessing the program’s profound ability to enhance communication, education, and health throughout the hospital campus, Are You Well came up with another novel idea: a cable radio program. Since 2007, they have operated a state- of-the-art public address system known on campus as Thendral—which means “breeze” in Tamil. The name was suggested by patients themselves, recognizing the cooling solace provided by basic human interaction on radio. It is education in an entertaining format. Thendral broadcasts for seven and half hours daily, six days a week, in the hospital’s 18 Tuberculosis and HIV wards as well as the out-patient area. It features hospital staff as on-air personalities.

Are You Well programming includes a 14-day curriculum, covering such topics as: What is HIV? What do my medications do in my body? Why is drug adherence so important? And how can I best handle the stigma of HIV/AIDS when I return to my home village? One special component of the curriculum deals with the psychosocial needs of HIV-positive women, who were not initially as responsive to the program as men. These new inputs come via the Mothers’ Voices curriculum devised by YRG Care, Chennai and AIDS Project Los Angeles (APLA). Weekly support group meetings for women have also been introduced in the recent past.

We are taking steps towards creating a replicable model for joint medical/artistic AIDS intervention. A leading research agency has evaluated the program model, revealing dramatic differences between patients who do and do not receive this intervention. Results showed: significant increases in knowledge regarding HIV and TB transmission as well as treatment adherence; significant decreases in stigma, both self stigma as well as stigma expressed against others living with HIV and AIDS; sharp rise in quality of life indicators; and importantly, the intervention resulted in significant behavior change (actual and intended) with regard to ART adherence, condom use, and personal advocacy such as peer-education behaviors.

On a conservative basis, we estimate that these programs reach over 33,000 new HIV and Tuberculosis (TB) patients and over 30,000 caregivers annually, providing over 220,000 patient-days of unique programming. In the coming year we propose to demonstrate the effectiveness of the Are You Well model at additional government hospitals in Tamil Nadu and healthcare settings in neighboring states.


Credits:

Funding provided by UNAIDS, UNESCO, and the Ford Foundation, with ongoing support from the Tamil Nadu State AIDS Prevention and Control Society (TANSACS).

Special thanks to YRG Care and AIDS Project Los Angeles for training in the Mothers’ Voices curriculum and WHO/SEARO and Positive Women’s Network for the support group meetings for women.

Nithya Balaji is the founding director of Nalamdana. R. Jeevanandham is the executive director. Madhu Jhona is coordinator of the project on the GHTM campus.

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